{"@context":"https://schema.org","@type":"Legislation","name":"Childhood Cancer STAR Act","description":"

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2018 or the Childhood Cancer STAR Act

TITLE I--MAXIMIZING RESEARCH THROUGH DISCOVERY

Subtitle A--Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act

(Sec. 101) This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with selected cancers that have the least effective treatments in order to achieve a better understanding of these cancers and the effects of treatment.

(Sec. 102) The national childhood cancer registry is reauthorized through FY2023 and revised to authorize the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers.

Subtitle B--Pediatric Expertise at NIH

(Sec. 111) The bill requires at least one member of the National Cancer Advisory Board, which advises the National Cancer Institute, to be knowledgeable in pediatric oncology.

Subtitle C--NIH Reporting on Childhood Cancer Activities

(Sec. 121) The NIH must ensure that information about supported childhood cancer research projects is included in appropriate congressional reports, including the Pediatric Research Initiative report.

TITLE II--MAXIMIZING DELIVERY: CARE, QUALITY OF LIFE, SURVIVORSHIP, AND CAREGIVER SUPPORT

(Sec. 201) The Department of Health and Human Services (HHS) may support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives.

HHS must also review departmental activities relating to workforce development for health care providers who treat pediatric cancer patients and survivors.

(Sec. 202) The NIH may continue to support research relating to pediatric cancer survivorship, including outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations.

(Sec. 203) HHS may also support the development of best practices regarding childhood and adolescent cancer survivorship care.

","legislationIdentifier":"S 292","legislationType":"Bill","legislationLegalForce":"InForce","legislationJurisdiction":"USA","legislationPassedBy":{"@type":"GovernmentOrganization","name":"United States Congress"},"author":[{"@type":"Person","name":"Jack Reed","url":"https://legisdaily.com/mp/jack-reed-us"}],"about":{"@type":"Thing","name":"Health"},"keywords":"Advisory bodies, Cancer, Child health, Congressional oversight, Department of Health and Human Services, Drug safety, medical device, and laboratory regulation, Drug therapy, Government information and archives, Government studies and investigations, Health care costs and insurance, Health care coverage and access, Health care quality, Health information and medical records, Health personnel, Health programs administration and funding, Home and outpatient care, Long-term, rehabilitative, and terminal care, Medical education, Medical research, Medical tests and diagnostic methods, Mental health, National Institutes of Health (NIH), Research administration and funding, Social work, volunteer service, charitable organizations","dateModified":"2025-06-04T00:00:00.000Z","url":"https://legisdaily.com/bill/USA-115-S-292"}

Jack Reed

Jack Reed

Health, Education, Labor, and Pensions Committee, Health Subcommittee, Energy and Commerce Committee