Legis Daily

RARE Act of 2019

USA116th CongressHR-4228| House 
| Updated: 9/9/2019
André Carson

André Carson

Democratic Representative

Indiana

Cosponsors (76)
Al Lawson (Democratic)Tom O'Halleran (Democratic)John Garamendi (Democratic)Roger Marshall (Republican)Marc A. Veasey (Democratic)Barbara Lee (Democratic)Mikie Sherrill (Democratic)Robin L. Kelly (Democratic)Joseph P. Kennedy (Democratic)Raúl M. Grijalva (Democratic)Tom Malinowski (Democratic)Stephanie N. Murphy (Democratic)Mark Pocan (Democratic)Karen Bass (Democratic)Peter T. King (Republican)Joyce Beatty (Democratic)Lisa Blunt Rochester (Democratic)Darren Soto (Democratic)Sheila Jackson Lee (Democratic)Ben Ray Luján (Democratic)Carolyn B. Maloney (Democratic)C. A. Dutch Ruppersberger (Democratic)Eliot L. Engel (Democratic)Terri A. Sewell (Democratic)Bobby L. Rush (Democratic)Jackie Walorski (Republican)J. Luis Correa (Democratic)Tony Cárdenas (Democratic)Angie Craig (Democratic)Donald M. Payne (Democratic)Thomas R. Suozzi (Democratic)Danny K. Davis (Democratic)Lucille Roybal-Allard (Democratic)Peter A. DeFazio (Democratic)Ro Khanna (Democratic)Ann M. Kuster (Democratic)Sean Patrick Maloney (Democratic)David P. Joyce (Republican)Stephen F. Lynch (Democratic)Harley Rouda (Democratic)G. K. Butterfield (Democratic)Richard Hudson (Republican)Doris O. Matsui (Democratic)Gregory W. Meeks (Democratic)David E. Price (Democratic)Jerrold Nadler (Democratic)Theodore E. Deutch (Democratic)John Lewis (Democratic)Josh Harder (Democratic)John H. Rutherford (Republican)Lucy McBath (Democratic)Peter J. Visclosky (Democratic)Eleanor Holmes Norton (Democratic)Larry Bucshon (Republican)Abby Finkenauer (Democratic)Jamie Raskin (Democratic)Cynthia Axne (Democratic)Sean Casten (Democratic)Janice D. Schakowsky (Democratic)James P. McGovern (Democratic)Julia Brownley (Democratic)Jerry McNerney (Democratic)Eddie Bernice Johnson (Democratic)Yvette D. Clarke (Democratic)Peter Welch (Democratic)Albio Sires (Democratic)Brian K. Fitzpatrick (Republican)Bennie G. Thompson (Democratic)Kendra S. Horn (Democratic)Susan W. Brooks (Republican)Nanette Diaz Barragán (Democratic)Gwen Moore (Democratic)Ayanna Pressley (Democratic)Alcee L. Hastings (Democratic)Lloyd Doggett (Democratic)Judy Chu (Democratic)

Health Subcommittee, Energy and Commerce Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Rare disease Advancement, surveillance Research, and Education Act of 2019 or the RARE Act of 2019 The bill reauthorizes through FY2024 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention (CDC) may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.
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Timeline
Sep 6, 2019
Introduced in House
Sep 6, 2019
Referred to the House Committee on Energy and Commerce.
Sep 9, 2019
Referred to the Subcommittee on Health.
Sep 9, 2019
Sponsor introductory remarks on measure. (CR E1107)
  • September 6, 2019
    Introduced in House


  • September 6, 2019
    Referred to the House Committee on Energy and Commerce.


  • September 9, 2019
    Referred to the Subcommittee on Health.


  • September 9, 2019
    Sponsor introductory remarks on measure. (CR E1107)

Health

Congressional oversightGovernment information and archivesHealth information and medical recordsHealth personnelHealth programs administration and fundingHealth promotion and preventive careMedical researchMedical tests and diagnostic methodsPublic-private cooperationResearch administration and fundingResearch and development

RARE Act of 2019

USA116th CongressHR-4228| House 
| Updated: 9/9/2019
Rare disease Advancement, surveillance Research, and Education Act of 2019 or the RARE Act of 2019 The bill reauthorizes through FY2024 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention (CDC) may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline
Sep 6, 2019
Introduced in House
Sep 6, 2019
Referred to the House Committee on Energy and Commerce.
Sep 9, 2019
Referred to the Subcommittee on Health.
Sep 9, 2019
Sponsor introductory remarks on measure. (CR E1107)
  • September 6, 2019
    Introduced in House


  • September 6, 2019
    Referred to the House Committee on Energy and Commerce.


  • September 9, 2019
    Referred to the Subcommittee on Health.


  • September 9, 2019
    Sponsor introductory remarks on measure. (CR E1107)
André Carson

André Carson

Democratic Representative

Indiana

Cosponsors (76)
Al Lawson (Democratic)Tom O'Halleran (Democratic)John Garamendi (Democratic)Roger Marshall (Republican)Marc A. Veasey (Democratic)Barbara Lee (Democratic)Mikie Sherrill (Democratic)Robin L. Kelly (Democratic)Joseph P. Kennedy (Democratic)Raúl M. Grijalva (Democratic)Tom Malinowski (Democratic)Stephanie N. Murphy (Democratic)Mark Pocan (Democratic)Karen Bass (Democratic)Peter T. King (Republican)Joyce Beatty (Democratic)Lisa Blunt Rochester (Democratic)Darren Soto (Democratic)Sheila Jackson Lee (Democratic)Ben Ray Luján (Democratic)Carolyn B. Maloney (Democratic)C. A. Dutch Ruppersberger (Democratic)Eliot L. Engel (Democratic)Terri A. Sewell (Democratic)Bobby L. Rush (Democratic)Jackie Walorski (Republican)J. Luis Correa (Democratic)Tony Cárdenas (Democratic)Angie Craig (Democratic)Donald M. Payne (Democratic)Thomas R. Suozzi (Democratic)Danny K. Davis (Democratic)Lucille Roybal-Allard (Democratic)Peter A. DeFazio (Democratic)Ro Khanna (Democratic)Ann M. Kuster (Democratic)Sean Patrick Maloney (Democratic)David P. Joyce (Republican)Stephen F. Lynch (Democratic)Harley Rouda (Democratic)G. K. Butterfield (Democratic)Richard Hudson (Republican)Doris O. Matsui (Democratic)Gregory W. Meeks (Democratic)David E. Price (Democratic)Jerrold Nadler (Democratic)Theodore E. Deutch (Democratic)John Lewis (Democratic)Josh Harder (Democratic)John H. Rutherford (Republican)Lucy McBath (Democratic)Peter J. Visclosky (Democratic)Eleanor Holmes Norton (Democratic)Larry Bucshon (Republican)Abby Finkenauer (Democratic)Jamie Raskin (Democratic)Cynthia Axne (Democratic)Sean Casten (Democratic)Janice D. Schakowsky (Democratic)James P. McGovern (Democratic)Julia Brownley (Democratic)Jerry McNerney (Democratic)Eddie Bernice Johnson (Democratic)Yvette D. Clarke (Democratic)Peter Welch (Democratic)Albio Sires (Democratic)Brian K. Fitzpatrick (Republican)Bennie G. Thompson (Democratic)Kendra S. Horn (Democratic)Susan W. Brooks (Republican)Nanette Diaz Barragán (Democratic)Gwen Moore (Democratic)Ayanna Pressley (Democratic)Alcee L. Hastings (Democratic)Lloyd Doggett (Democratic)Judy Chu (Democratic)

Health Subcommittee, Energy and Commerce Committee

Health

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Congressional oversightGovernment information and archivesHealth information and medical recordsHealth personnelHealth programs administration and fundingHealth promotion and preventive careMedical researchMedical tests and diagnostic methodsPublic-private cooperationResearch administration and fundingResearch and development