This resolution seeks to raise awareness about chordoma , an aggressive yet slow-growing bone cancer that primarily affects the skull and spine. It notes that this rare disease impacts over 25,000 individuals worldwide, with approximately 300 new diagnoses occurring annually in the United States. The bill emphasizes the significant challenges in treating these tumors due to their involvement with critical structures like the brain stem and spinal cord, which often leads to high recurrence rates even with optimal surgical and radiation care. A major concern highlighted is the current absence of effective drug treatments, leaving patients with limited options once surgical and radiation therapies are exhausted. Consequently, the House of Representatives declares its support for increased funding and resources. This support is intended to advance accurate and early diagnosis , facilitate the development of new treatments, diagnostics, and cures , streamline the path from research to new therapies, and promote patient-centric approaches in drug discovery and development.
Raising awareness for the sarcoma cancer chordoma.
USA119th CongressHRES-1081| House
| Updated: 2/25/2026
This resolution seeks to raise awareness about chordoma , an aggressive yet slow-growing bone cancer that primarily affects the skull and spine. It notes that this rare disease impacts over 25,000 individuals worldwide, with approximately 300 new diagnoses occurring annually in the United States. The bill emphasizes the significant challenges in treating these tumors due to their involvement with critical structures like the brain stem and spinal cord, which often leads to high recurrence rates even with optimal surgical and radiation care. A major concern highlighted is the current absence of effective drug treatments, leaving patients with limited options once surgical and radiation therapies are exhausted. Consequently, the House of Representatives declares its support for increased funding and resources. This support is intended to advance accurate and early diagnosis , facilitate the development of new treatments, diagnostics, and cures , streamline the path from research to new therapies, and promote patient-centric approaches in drug discovery and development.